DH95 Full Story

Meet Destination Home Family 95

August 29, 2018

I'm almost 10 months old and have been through a whole lot. Here's my story...

My Mom had a normal pregnancy. All my ultrasounds showed a normal baby. I kicked, and flipped, and did everything a baby does in the womb. Everything changed on my birthday when I came out blue and lifeless. I cried a little and then was swooped away from my Mom. While Mom was recovering from her C-section, the medical team was trying to figure out how to make me better. They told Mom & Dad that I was really sick and needed to go to St. Louis Children's Hospital for specialized care. I only got to see my parents for a short time before I left. A few days later when Mom and Dad got to see me again, the doctors told them that I have cancer. It was a neuroblastoma tumor pushing on my airway that made it hard for me to breath. I've had 4 rounds of chemo, each 21 days apart. I've also had surgery to repair my little heart, a tracheostomy to help me breath, and a G-button to make sure I get all my nutrition. I am getting stronger every day and am SOO close to being able to go home with my family.

DH79 Full Story

Meet Destination Home Family 79

March 21, 2018

I was born 7 weeks early weighing 4 lbs 11 oz. I'm a big boy for my age but my early arrival came as a BIG surprise to my family. At first, I had some trouble with my breathing and needed CPAP. Now I'm oxygen free, learning how to breastfeed, and drink from a bottle. It's hard to coordinate swallowing and breathing at the same time but I'm doing my best and getting stronger every day.

DH74 Full Story

MEET DESTINATION HOME FAMILY 74

March 6, 2018

"I was born 4 weeks early weighing 5lbs, 1 oz. I've had problems with my kidneys that've caused me to spend my entire life in the hospital. I'm 6 months old now and my Mom & I are learning about all the special equipment and machines that I'll need when I go home. I have to have dialysis for 14 hours every day, that means that I must be connected to a machine by tubing. Im learning how to use a bottle but still get some nutrition from a feeding tube. It's hard to be attached to machines all the time but I'm still a happy girl! I love to smile and play and listen to people talk. I love spending time with my Mom and I cannot wait for the day when we can be together all the time at HOME!"