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Meet Destination Home Family 95


I'm almost 10 months old and have been through a whole lot. Here's my story...


My Mom had a normal pregnancy. All my ultrasounds showed a normal baby. I kicked, and flipped, and did everything a baby does in the womb. Everything changed on my birthday when I came out blue and lifeless. I cried a little and then was swooped away from my Mom. While Mom was recovering from her C-section, the medical team was trying to figure out how to make me better. They told Mom & Dad that I was really sick and needed to go to St. Louis Children's Hospital for specialized care. I only got to see my parents for a short time before I left. A few days later when Mom and Dad got to see me again, the doctors told them that I have cancer. It was a neuroblastoma tumor pushing on my airway that made it hard for me to breath. I've had 4 rounds of chemo, each 21 days apart. I've also had surgery to repair my little heart, a tracheostomy to help me breath, and a G-button to make sure I get all my nutrition. I am getting stronger every day and am SOO close to being able to go home with my family.


 
 
 

Meet Destination Home Family 79

I was born 7 weeks early weighing 4 lbs 11 oz. I'm a big boy for my age but my early arrival came as a BIG surprise to my family. At first, I had some trouble with my breathing and needed CPAP. Now I'm oxygen free, learning how to breastfeed, and drink from a bottle. It's hard to coordinate swallowing and breathing at the same time but I'm doing my best and getting stronger every day.

 
 
 

March 6, 2018


"I was born 4 weeks early weighing 5lbs, 1 oz. I've had problems with my kidneys that've caused me to spend my entire life in the hospital. I'm 6 months old now and my Mom & I are learning about all the special equipment and machines that I'll need when I go home. I have to have dialysis for 14 hours every day, that means that I must be connected to a machine by tubing. Im learning how to use a bottle but still get some nutrition from a feeding tube. It's hard to be attached to machines all the time but I'm still a happy girl! I love to smile and play and listen to people talk. I love spending time with my Mom and I cannot wait for the day when we can be together all the time at HOME!"

 
 
 
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(314) 472-3392   •   GiFT@givingisafamilytradition.org   •   P.O. Box 39313   •  St. Louis, MO  63139

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